Health Reform

I Am Essential Coalition comments on HHS NBPP 2018 Proposed Rule

We, the 153 undersigned patient and community organizations representing millions of patients and their families, are pleased to submit comments on the proposed rule, Notice of Benefit and Payment Parameters for 2018 (NBPP) (81 FR 61455, Sep. 6, 2016). Our comments reflect the experiences beneficiaries we represent have encountered while shopping for and utilizing the Qualified Health Plans (QHPs) over the past three years.

I Am Essential Coalition comments on HHS Notice of Benefit and Payment Parameters for 2018 Proposed Rule

The "I Am Essential" coalition, representing hundreds of patient groups and their allies, has prepared comments on the U.S.

I Am Essential Coalition sends letter to HHS Secretary on 2017 QHP Review & Notice of Benefit and Payment Parameters Rule & Letter to Issuers

I Am Essential, a coalition of patient and community organizations representing millions of patients and their families dedicated to successful implementation of the Affordable Care Act (ACA), wrote a letter to The Honorable Sylvia Matthews Burwell, the Secretary of Health and Human Services, urging her to improve access to Essential Health Benefits and address discrimination against beneficiaries with chronic and serious health conditions enrolled in Qualified Health Plans (

I Am Essential comments to Republican and Democatic National Platform Committees

Below are public comments that the I Am Essential coalition submitted to the Republican National Platform Committee and the Democratic National Platform Committee in advance of the 2016 national conventions.

Florida to Continue Patient Cost-sharing Limits for HIV Drugs in 2017

The AIDS Institute praises the Florida Office of Insurance Regulation (FOIR) for requiring insurers to again limit patient cost-sharing for HIV medications as they submit for review their 2017 Qualified Health Plans (QHPs).

Letter to FL Insurance Commissioner on lack of coverage for HCV drugs in QHPs in Florida

Below is a letter to the Florida Insurance Commissioner concerning insurance coverage or lack thereof for Hepatitis C drugs for insureds enrolled in Qualified Health Plans in Florida. The AIDS Institute joins AfPA in this request. We write with the hope that formal dispute resolution or litigation can be avoided but time is short and the crisis is real.

AIDS Foundation of Chicago and The AIDS Institute Recognize Ambetter for Increasing HIV Medication Coverage

Below is a press release from The AIDS Foundation of Chicago and The AIDS Institute reporting that through their joint advocacy, national health insurance provider Ambetter Health has agreed to expand the list of medications it covers to include life-saving daily treatments for people living with HIV. 

I Am Essential Comments on Draft 2017 Letter to Issuers in the Federally-facilitated Marketplaces

Below are the comments from the I Am Essential coalition on the Draft 2017 Letter to Issuers in the Federally-facilitated Marketplaces. In the coalition's letter, we thank CMS for requiring QHPs to include many important patient protections and reminders that plans cannot discriminate against beneficiaries, especially those with serious health needs.  However, we reiterate the need for CMS and the states to actually enforce these patient protections and call out discriminatory plan design.

"I Am Essential" Coalition Comments on Notice of Benefit and Payment Parameters for 2017 Proposed Rule

The "I Am Essential"coalition, representing hundreds of patient groups and their allies, has prepared comments on the U.S.

Syndicate content