Health Reform

279 Patient Groups Applaud Proposed Changes to Essential Health Benefits

December 19, 2014 -- Today, the “I Am (Still) Essential” coalition of patient groups sent a letter signed by 279 organizations to Health and Human Services (HHS) Secretary Sylvia Mathews Burwell applauding the recently released Notice of Benefit and Payment Parameters for 2016 which, once finalized, define Essential Health Benefits (EHB) for Qualified Health Plans (

Humana Agrees to Significantly Cut Cost of HIV Drugs for Patients in Florida

December 18, 2014 - The AIDS Institute welcomes an agreement  between Humana Medical Plan and the Florida Office of Insurance Regulation that significantly reduces patient cost-sharing for all HIV drugs on qualified health plans offered by Humana in the Florida marketplace. See the press release below. 

Draft letter to HHS Secretary Burwell on Notice of Benefit and Payment Parameters for 2016 Proposed Rule

We, the undersigned patient and community organizations representing millions of patients and their families, are pleased to submit comments in support of many aspects of the proposed rule Notice of Benefit and Payment Parameters for 2016 (79 FR 70673, Nov. 26, 2014)). We thank you and your Department for listening to the voices of the patient community who wholeheartedly want the Affordable Care Act (ACA) to work, especially for those with chronic conditions.

Urgent Action Needed to Correct Lack of Transparency in Prescription Drug Formularies

"In order to have a successful open enrollment and re-enrollment process, we urge [Healthcare.gov] to take immediate corrective action to ensure that these requirements are met immediately."

August Update: The AIDS Institute Issues Coverage Guide for National HIV Testing Day

The Coverage Guide has been updated for August. Please click here: Coverage Guide or click the PDF below

August Update: Hepatitis C Testing Coverage Guide

May 16, 2014 "...Through a combination of a new recommendation in support of HCV testing and changes to the health insurance landscape under the Affordable Care Act (ACA), there will be greater access to insurance coverage and to reimbursable HCV screening across various healthcare payers." This paper offers guidance on each major payer's role. <

333 Patient Groups Ask HHS Secretary to Reduce Barriers to Care In Qualified Health Plans

July 28, 2014

“Patients are grateful that the Affordable Care Act means they cannot be turned away from health coverage...But limited benefit coverage, cost-sharing for medications that can reach as high as 50%, and a lack of transparency in several plans mean many patients...are not receiving the care and medications they need.” - Click here to read the letter and press release.

Evidence Mounting Of Discrimination against People with HIV By Some Insurance Plans

June 13, 2014

“We want the Affordable Care Act (ACA) to work, and we want it to work for people living with HIV/AIDS and others with chronic health conditions...But shifting the cost of medications to the patients is not only blatant discrimination but can lead to poorer health outcomes...”  

NHeLP and The AIDS Institute File HIV/AIDS Discrimination Complaint Against Florida Health Insurers

May 29, 2014 --

"The [insurance] companies are going out of their way to discourage people with HIV/AIDS from enrolling in their plans—a blatantly illegal practice.” 

Click here to read the press release.

The AIDS Institute Submits Written Testimony to the Senate Appropriations Health Commitee

May 23, 2014 

"Over the past thirty years we have made great progress in the fight against HIV/AIDS and are truly at a tipping point. However, without stable and adequate funding that progress is in jeopardy, as well as the lives of millions who are or will be infected."

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